Wednesday, April 27, 2005

So Mad I Could Spit

I'm so incredibly angry, I feel like we've wasted the last year waiting around for one doctor or another to get us results or for forms to be processed or for Alex to be a little older, or for the next damn appointment. They say that the sooner autistic kids get some help the better, and we've been in such a holding pattern for so long now. And Alex has had some help, which I know has improved him, and I'm grateful for that. But I know he could be so much further along.

The reason I'm so incredibly upset right now is that the clinic we take him to is pretty well respected in other areas, so I felt comfortable taking him there for the child development clinic. It is the closest to us, at 45 minutes. It has been one screw up after another. They have given us some good information, but they have not sent us reports, not sent us results, lost forms that we've sent, lost forms that Alex's care givers have sent, have not filled out forms that are needed for other services completely, have changed appointments without informing us, can not figure out that Alex's dad has one address and I have a different address. They send things to me at his address, and things to him at mine. If I ask for something, they'll send it to him. And it usually doesn't matter, because we get along in all things Alex, but when there is a time crunch, them sending it to the wrong address in a different city, isn't helpful. They've changed the head of the clinic once already in the 8 months we've been taking him there, and maybe that was what was needed, but I'm hearing that this is happening to other families too.

We've got another appointment with them next week, and if I'm not satisfied when I leave there, we're going to have to take him to a different clinic. Most likely it will add a couple of hours to our drive, but if it reduces the aggravation it will be worth it. And don't get me wrong, I'm not disputing their results, or Alex's diagnosis, I'm angry that they have made this incredibly stressful time even more stressful.

I could seriously spit.

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